Friday 13th October 2023 IVIG

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Personal dislike for all Friday 13th “What can go wrong will go wrong” 99% of every other date/day of the year I wouldn’t entertain a quote like that I’m more “ What can go wrong can be sorted” but historically Friday 13th’s don’t turn out well. And of all days it’s a hospital appointment for advanced treatment with a twist.

IVIG plus IVIGs and another trial cancer drug that I will not be explaining inside this article, what I am prepared to say is that it is classed as a once off targeted infusion of incredible strength, the trials have shown fascinating results but not covered by public or private health. €2,400 for this single drug, the use of IVIG is covered by my private health care but if it wasn’t the bill would be about €6,000. But €2,400 for a person on invalidity pension is a serious amount of money so thank god for Visa cards.

The day begins for a change with meeting the oncologist, my own Oncologist is away at a conference (luckily for him). Lengthy discussions as I have not seen this particular oncologist in close to a year. Some of the conversation was more informative and direct.

Dart Board

Blood Test

Serious amounts of blood test to follow. 

ESR

IGG

LDH

Full blood work 

Blood pressure tests

ECG

My blood pressure was excellent for a change 138/85. When my close and badly missed friend Terry passed away on 20th of September I struggled to reduce my blood pressure from 202/108.

IVIG & IVIGs Plus trial drug.

IVIG plus

Weighing in at 80kgs 

Before commencing I have a couple of paracetamol. And antihistamines via IV along with steroid drip. And the first IVIG commences

These infusions take hours. The antihistamines drip can create a lot of tiredness and the also added antibiotics through drip. Between IVIG and IVIGs I get keytruda 200 mg intravenously for 30 minutes. This should be interesting

Conference call with oncologist at 6:30pm next Tuesday to talk about blood test and this treatment.

Side effects: are substantial but “Fuck that” if they happen I’ll deal with it. Excuse the use of bad language but it’s my attitude. The medical team know me a long time and my nickname since 2014 on theses wards has and remains to be Chemo Monster

And back to my last infusion of IVIGs

And that’s it… just a last blood test before getting cleared to go home My scans have been booked for 27th of October and not today.

This article was created as I was been treated today, so it’s very defined and updated over hours of treatment

We have reached a decision to continue all our websites & blog site for as long as possible.

I’ve lost too many friends & family both to Cancer and dementia. Its important for us to continue to burn our little candle, that is precious to me, the only way is on these sites.

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E-Mail ian@hlai.ie
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